Showing posts with label rare. Show all posts
Showing posts with label rare. Show all posts

Saturday, April 17, 2010

Baby Born With Brain Outside Body Dies Less Than 2 Months After Being Born



MyFoxHouston.com: HOUSTON - An update on a baby, who touched the hearts of many of our viewers. Braden Ezekial Asher lost his battle to a brain malformation.

He was born with a condition called Chiari III, where his brain and brain stem formed on the outside of his head.

He brought his family a lot of joy during his short lifespan. Doctors expected him to take only one breath, after he was born on February 25th of this year. He gave them almost two months of joy and really showed his personality during that time. He would even open his little eyes and make eye contact, which was a huge blessing for his family.

Here's the information for his funeral:

Funeral for Braden:
Friday 4/16/2010



10:30 a.m.
Houston National Cemetery
10410 Veterans Memorial Drive
Houston, TX 77038

The Ashers ask for donations to a charity, versus flowers.

They urge others to donate to the Chiari Foundation for more research about this condition or Texas Children's Hospital.

More information about Chiari can be found at: http://www.csfinfo.org/

courtesy of lukescorner.ning.com

Sunday, March 21, 2010

*From Then To Now* Rare Look At Angelina Jolie 19 Years Ago




DailyMailCoUK.com: She is now one of the world’s most famous women, but even at the age of 15, it was clear Angelina Jolie had star potential.
Jolie, the daughter of Hollywood actor Jon Voight, became a model in her teens, while she was a drama student.

With her bee-stung lips and sultry brown eyes Jolie poses confidently for the camera in this newly released 19-year-old photograph

She started her screen career in music videos, most memorably for the Rolling Stones and Meatloaf, before moving into movies.

Now 34, she is in a relationship with Brad Pitt and is an Oscar-winning star, UN ambassador and mother of six – two with Pitt and four adopted from Cambodia, Vietnam, Ethiopia and Namibia.

Meanwhile, Jolie was spotted earlier in the week filming scenes for her new film The Tourist.
However, as she took a boat ride down a canal in Venice, it was not the beautiful scenery that seemed to hold the actress captive.
Wearing what seemed to be a conical bra, the Hollywood star was caught staring down at her pointy chest.





The 34-year-old brunette was on location for the movie, in which she stars alongside Johnny Depp.
Earlier in the week she was spotted with Depp filming scenes on the city's network of waterways.

The pair enjoyed a short cruise as they shot the film - but it could quite easily have been mistaken for something a bit more romantic.

courtesy of lukescorner.ning.com

Tuesday, December 29, 2009

12 Year Old Girl Trapped Inside Body Of Someone In Their 80s Defies Odds And Completes First Term At School



TheArgusCo.UK: A girl with a rare genetic condition has successfully ended her first term at secondary school.

Hayley Okines, 12, whose body is ageing eight times faster than normal, is one of only two children in Britain to suffer from Hutchinson-Gilford progeria syndrome.

It means she is trapped in the body of a person in their 80s and her symptoms include baldness, arthritis and heart problems.

The average life expectancy for children with the condition is 13 but Hayley and her family live life to the full.

The youngster recently returned from a birthday trip to Orlando following a successful first term at Bexhill Secondary School.

Mum Kerry said: “She has settled in really well and made two really good new friends.

“The school has been hugely supportive and have helped her get around and go from class to class so she does not get bumped or knocked down by other students.

“She is doing well in lessons too and does not seem to be having any problems.

“On her first day I asked her if she wanted me to come in with her but she said she could do it by herself and since then has never looked back.

“I'm not sure we could say she is looking forward to going back to school next term as the novelty has worn off now but she is happy there and that is the main thing.”

The results of a two year US-based drugs trial treatment Hayley took part in to help slow the ageing process caused by progeria, are expected to be published in February.

The youngster is currently taking part in a separate trial and her mother says she is doing well.

Hayley, of Meadow Crescent, Bexhill, first came to public attention in 2005 when she starred in a Channel 5 documentary Extraordinary People.